Resources
Below you will find resources we have used to build this platform. These resources can be used to help facilitate the education of genomics and related aspects for students aged between 10-18 years.
Inheritance
https://www.yourgenome.org/theme/what-is-inheritance Your Genome Website credited to Wellcome Sanger Institute UK
Rare Conditions
https://rarediseasebookforkids.com/ A book for children living with a rare condition
Family Units
A Family is a Family is a Family– Digital or print book on family units
Respectful Relationships
Resources on genes and health variation
Resources on PKU
https://www.healthdirect.gov.au/phenylketonuria Fact Sheet on PKU
https://mdda.org.au Patent support group resources
https://www.hgsa.org.au/common/Uploaded%20files/pdfs/asiem%20dietary%20handbooks/PKU.pdf PKU Handbook from Australasian Society for Inborn Errors of Metabolism (ASIEM)
Resources on Cystic fibrosis
https://cfsmart.org.au/cf-education-at-your-school/
https://www.genetics.edu.au/PDF/Cystic_fibrosis_fact_sheet-CGE.pdf CF Fact Sheet from NSW Health
Resources on Sickle cell anaemia
Resources on SMA
Prenatal and postnatal testing
- Prenatal genetic testing Source Victorian Clinical Genetic Services
- What is a Genetic Test? Source Melbourne Genomics Alliance
- Sequencing Guide Source Undiagnosed Diseases Network (Harvard)
SMA Australia and patient peer support
Ethical, legal and social implications of genomic testing (ELSI)
- Australians’ views and experience of personal genomic testing: survey findings from the Genioz study
- The Genioz Study – Melbourne Medical School :Personal genomic testing, what is it and what does it mean for Australians?
- Department of Health NSW Fact Sheet on genetic Testing
DNA and general foundational biology for human genetics
DNA Fact Sheet – National Institute Human Genome Research
Genetics Vs. Genomics Fact Sheet National Institute Human Genome Research
DNA, genes and the genome Melbourne Genomics Health Alliance E-learning guide for patients and interested readers
Case Study 1: Cystic fibrosis
- cystic fibrosis together– Australian peak body for Cystic fibrosis peer support
- National Human Genome Research Institute https://www.genome.gov/Genetic-Disorders/Cystic-Fibrosis
Case Study 2: Epilepsy
- Whole Genome Sequencing Source Hospital for Sick Children Canada (SickKids )
- Step by Step explain what genomic test Source Melbourne Genomics
- Human Genome Project Fact Sheet
- Understanding genomics (100,000 Genomes Project)
- Melbourne Genomics Dive Deeper into genomics
- Genomic Career Pathways Guide
